The Province Cares: Help out a family as they grapple with their son’s rare disease

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Last week I had the honour of writing a front-page story for The Province about little Nolin, a three-year-old Mission boy who was the first in the world to be diagnosed with NANS deficiency. It’s a devastating disease that has left him unable to talk, lift his head, or even move much on his own. He’s completely dependent on caregivers for everything. Doctors and researchers have already learned a great deal from him and they’re hoping to be able to help other sufferers of the condition. In the meantime, the family is raising funds to try to make Nolin’s life a little better. Help them out if you can!

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About Peter Darbyshire (Roman)

Nothing to see here. Move along.

Posted on October 12, 2015, in Shrapnel and tagged , , , , . Bookmark the permalink. Leave a comment.

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